After only one week at home following a difficult round of chemotherapy, compounded by a life threatening stay in the Intensive Care Unit, Lexe reported to the hospital to begin her 4th and final round of chemo. The day started with a visit to the Cardiology Department for an echocardiogram and an EKG. Lexe then had clinic with her Oncologist who drew labs and examined her. Clinic was followed by a spinal tap and bone marrow aspirate in the outpatient surgical suite. Following the surgical procedures, Lexe walked herself up to the Cancer Unit to begin chemotherapy. She did not want to be pushed in a wheelchair.
This round of chemo will last six days. Chemo will be administered twice per day. Lexe will be given both Ara-C and Mitoxantrone. Mitroxantrone will be given for the first time and is a pretty nasty drug. The drug is actually blue in color and hard on the heart. The fourth and final round is called Intensification II.
During clinic Lexe was told that her heart has been slightly effected by a combination of chemotherapy and the shock of her Intensive Care experience. The echocardiogram she received today was compared to her first echocardiogram given prior to any treatment. Lexe's heart is not squeezing as hard today as it was prior to treatment. Her physician is hopeful that this condition will correct itself once treatment is concluded and Lexe is fully recovered. As added protection for her heart, prior to Lexe receiving her dose of Mitroxane, she will be given the drug Dexrazoxane which helps protect the heart against cardiotoxic agents.
Lexe has lost weight and is still a bit fragile but her physicians feel that pushing ahead with the final round gives her the best chance to beat leukemia. We are all a bit nervous about things but we have put our trust in Lexe's providers and are hoping for a smooth course of treatment. Lexe is calm and confident and is constantly telling us that everything will work out just fine. So with Lexe's confidence we forge ahead!!
On April 20, our daughter, sister, teammate and friend was diagnosed with Leukemia (AML). This cancer is placing her in the hospital for 6 months while she has chemotherapy. Right now her goal is to be able to walk at her senior graduation on June 6. She is determined to beat this cancer with her family, friends and soccer team by her side. We hope this blog will be able to keep our friends and family updated and involved in her journey to 'Kick Leukemia!'
Monday, August 27, 2012
Tuesday, August 21, 2012
After 17 long challenging days, Lexe was released from the Intensive Care Unit last Sunday. We are grateful for the wonderfully skilled providers who attended to Lexe during her stay. Lexe has little recollection of her stay in the ICU which is a good thing. Lexe was transferred back to the regular cancer unit where she spent Sunday night. After meeting with her Oncologists on Monday, Lexe was sent home. It is amazing that she does not need oxygen given the shape her lungs are in. Lexe is doing her part to fight through this setback. She is weak and somewhat frail but we are so glad she is home. Everything Lexe does takes a lot of effort including walking, stairs, eating etc.
It has been decided that Lexe will start her 4th and final round of chemo next Monday. She will have another bone marrow aspirate and spinal tap followed by the start of a six day chemo cycle. We are all very nervous given the events of the last several weeks. We are trying really hard to get Lexe to eat and have till Monday to get some of her weight back. Lexe will be followed by the Pulmonary team over the remainder of her treatment. They want to baseline her pulmonary abilities once she is strong enough to take the Pulmonary Function Test. Lexe will need to perform regular lung exercises for the foreseeable future. In order to minimize complications during round four, we have decided, in conjunction with Lexe's physicians, to limit Lexe's exposure to visitors. This was a difficult yet necessary decision. We encourage all of Lexe's support group to continue to stay in touch with Lexe via texting, Facebook, Skype, phone calls, emails, or blog messaging. This ordeal will soon be over and at some point normalcy will return! Please keep your relationship with Lexe active!
Lisa Oyen, U of A soccer coach, forwarded to us a great picture last week. The team is wearing a special warm up top this year in honor of Lexe. Every warm up jersey will be number 13, Lexe's number. The girls have all reached out to Lexe via texts, Facebook or letters. Even though we have never had the privilege of meeting many of these young ladies, they hold a special place in our hearts. Thank you girls!! The attached link tells the story:
http://www.arizonawildcats.com/sports/w-soccer/spec-rel/081712aad.html
Lexe's friend Ellee Duke the performer who wrote "I Came To Win --Lexe's Song", has now hosted the song on iTunes. Ellee will soon release her first album which I believe includes "I Came To Win". All proceeds from purchasing the single off of iTunes will go to Lexe. We feel, as does Ellee and her family, that the song was heavenly inspired. Ellee wrote the song April 22nd just days after Lexe's diagnosis. Little did we know then just how true the lyrics of her song would come to be. Thank you again Ellee for such a beautiful inspired song. Please support both Ellee and Lexe and download this great song. The song will compliment any playlist. The attached youtube link is Ellee introducing her song:
http://www.youtube.com/watch?v=X7jo9o9xoss&feature=plcp
Wish Lexe luck as she begins her fight with the FINAL ROUND!!
Lexe's third round welcome home sign |
It has been decided that Lexe will start her 4th and final round of chemo next Monday. She will have another bone marrow aspirate and spinal tap followed by the start of a six day chemo cycle. We are all very nervous given the events of the last several weeks. We are trying really hard to get Lexe to eat and have till Monday to get some of her weight back. Lexe will be followed by the Pulmonary team over the remainder of her treatment. They want to baseline her pulmonary abilities once she is strong enough to take the Pulmonary Function Test. Lexe will need to perform regular lung exercises for the foreseeable future. In order to minimize complications during round four, we have decided, in conjunction with Lexe's physicians, to limit Lexe's exposure to visitors. This was a difficult yet necessary decision. We encourage all of Lexe's support group to continue to stay in touch with Lexe via texting, Facebook, Skype, phone calls, emails, or blog messaging. This ordeal will soon be over and at some point normalcy will return! Please keep your relationship with Lexe active!
Lisa Oyen, U of A soccer coach, forwarded to us a great picture last week. The team is wearing a special warm up top this year in honor of Lexe. Every warm up jersey will be number 13, Lexe's number. The girls have all reached out to Lexe via texts, Facebook or letters. Even though we have never had the privilege of meeting many of these young ladies, they hold a special place in our hearts. Thank you girls!! The attached link tells the story:
http://www.arizonawildcats.com/sports/w-soccer/spec-rel/081712aad.html
Lexe's future U of A teammates honoring her by wearing number 13 on their warmups. |
Lexe's friend Ellee Duke the performer who wrote "I Came To Win --Lexe's Song", has now hosted the song on iTunes. Ellee will soon release her first album which I believe includes "I Came To Win". All proceeds from purchasing the single off of iTunes will go to Lexe. We feel, as does Ellee and her family, that the song was heavenly inspired. Ellee wrote the song April 22nd just days after Lexe's diagnosis. Little did we know then just how true the lyrics of her song would come to be. Thank you again Ellee for such a beautiful inspired song. Please support both Ellee and Lexe and download this great song. The song will compliment any playlist. The attached youtube link is Ellee introducing her song:
http://www.youtube.com/watch?v=X7jo9o9xoss&feature=plcp
Wish Lexe luck as she begins her fight with the FINAL ROUND!!
Friday, August 17, 2012
We are starting to see light at the end of the tunnel. Lexe is still in the Intensive Care Unit. Her lungs are still sick but today she was taken off of the vent and put on high flow oxygen. Her chest x-ray looked pretty good today, there is still room for improvement. Lexe was so happy to have the vent tube taken out. She can now smile and finally drink. Her throat is very sore and her voice is weak but that should resolve over the next couple of days. The plan is to keep Lexe in the ICU for the next several days. She has been cleared to start eating soft foods but she has no appetite. They placed an NJ Tube in her about 10 days ago so she has received some calories. Lexe will soon be moved back to the cancer unit to continue her recovery. She lost weight and muscle mass over the past two weeks so she needs to take on as many calories as possible. Lexe's physicians have told us that recovery from ARDS can take months.
One of the physician in the ICU told us today that immunocompromised patients that develop septicemia from Streptococcus Midas have a mortality rate of 60%. Add to that Acute Respiratory Distress Syndrome, which has a 40% mortality rate, and it is easy to conclude that Lexe beat some tough odds. The reality of how sick Lexe got is very sobering.
The past 15 days have been a very trying experience for our family and certainly for Lexe. We have felt the prayers and support from everyone. Lexe has had well over 110,000 hits on her blog from all over the world. Concentrated hits have come from the United States, Canada, UK, Finland, Russia, Sweden, Australia, Austria, Netherlands, Brazil, Ukraine, Belgium and the list goes on. We are touched that so many people have taken an interest in Lexe.
One of the physician in the ICU told us today that immunocompromised patients that develop septicemia from Streptococcus Midas have a mortality rate of 60%. Add to that Acute Respiratory Distress Syndrome, which has a 40% mortality rate, and it is easy to conclude that Lexe beat some tough odds. The reality of how sick Lexe got is very sobering.
The past 15 days have been a very trying experience for our family and certainly for Lexe. We have felt the prayers and support from everyone. Lexe has had well over 110,000 hits on her blog from all over the world. Concentrated hits have come from the United States, Canada, UK, Finland, Russia, Sweden, Australia, Austria, Netherlands, Brazil, Ukraine, Belgium and the list goes on. We are touched that so many people have taken an interest in Lexe.
Monday, August 13, 2012
We feel we may have reached a point of stability. We think we are safe in saying that but are never really sure so this post is written with crossed fingers. Lexe's lungs are still very sick but today we were able to see more of her ribs, her diaphragm and a better view of her heart on the chest x-ray. The bottom half of both lungs are still cloudy. All of her IVs have been removed and medications are being administered through her central line. The plan is to start stepping down her pain medication to avoid withdrawal symptoms.
Now that Lexe has developed some of her own immunities she has been moved into a new room in the Intensive Care Unit. She has windows which allow her to start adjusting to day and night cycles. The room is also in a low traffic area of the ICU helping her develop a normal sleep cycle. She continues to be on the vent. The plan is to work towards having the vent taken off near the end of the week if her lungs cooperate. Lexe is very weak and it is a struggle to even raise her arms. They sat her up today for the first time and she was able to tolerate it for about 15 minutes. Lexe's body has really been taxed during the last 11 days and recovery is going to take time. We are so grateful for the wonderful staff of caregivers in the PICU, they saved her life.
Lexe still needs to complete the last round of her chemotherapy to treat her leukemia. It's hard for us to even image the thought. I guess we can worry about that after we get her out of the ICU and stronger.
Thank you again for all the prayers and well wishes that our family has received during this very trying ordeal.
Now that Lexe has developed some of her own immunities she has been moved into a new room in the Intensive Care Unit. She has windows which allow her to start adjusting to day and night cycles. The room is also in a low traffic area of the ICU helping her develop a normal sleep cycle. She continues to be on the vent. The plan is to work towards having the vent taken off near the end of the week if her lungs cooperate. Lexe is very weak and it is a struggle to even raise her arms. They sat her up today for the first time and she was able to tolerate it for about 15 minutes. Lexe's body has really been taxed during the last 11 days and recovery is going to take time. We are so grateful for the wonderful staff of caregivers in the PICU, they saved her life.
Lexe still needs to complete the last round of her chemotherapy to treat her leukemia. It's hard for us to even image the thought. I guess we can worry about that after we get her out of the ICU and stronger.
Thank you again for all the prayers and well wishes that our family has received during this very trying ordeal.
Sunday, August 12, 2012
This morning at 4:00 am Lexe started have troubles keeping her oxygen saturations levels in a normal range. Her ventilator pressures needed to be increased again in order for her to get enough oxygen. This is a setback!! Her chest x-ray this morning showed increased secretions in her lungs. Her heart is again rolling left against her lung. We will find out this morning what the game plan is for the day.
Lexe body is fevering hard and she is trying to cough. Now that she is off the paralytic medicine you can see her facial expressions and it breaks our hearts to see her pain. Every time they suction her lungs through her vent tube Lexe will squeeze your hand with great force. It seems to be a very unpleasant experience. She is disoriented yet aware of her situation. On occasion we see her tears. We write most of these posts through our own tears as well.
Lexe body is fevering hard and she is trying to cough. Now that she is off the paralytic medicine you can see her facial expressions and it breaks our hearts to see her pain. Every time they suction her lungs through her vent tube Lexe will squeeze your hand with great force. It seems to be a very unpleasant experience. She is disoriented yet aware of her situation. On occasion we see her tears. We write most of these posts through our own tears as well.
Saturday, August 11, 2012
The last nine days have been an emotional roller coaster for our family. We have come to understand that things in the Intensive Care Unit change very rapidly. Don't ever get comfortable because you never know what is coming next. With that in mind, Lexe has had a good last couple of days. We are afraid to even say that!!
Today Lexe's ANC count, a measure of her own bodies immunity, jumped from 300 to 1400. It is rare to see such a jump over a 24 hour period. It now means that Lexe can help herself in clearing out her own lungs. Several day ago Lexe was placed on an oscillating vent to help break up the material in her lungs. This type of vent sends small rapid infusions of oxygen into the lungs, shaking them, to help diffuse all the secretions. Today Lexe was transitioned back to a regular vent. She tolerated the transition and seems to be much more comfortable with the vent. Lexe was also taken off the paralytic medication but remains heavily sedated. Lexe continues to fever. She remains on the cooling blanket, however, now she is off the paralytic medication her shivering reflex is active making the blanket less effective because shivering heats the body.
It was tough for us to leave her tonight because she was in pain and very disoriented. She was trying to communicate with us but with the vent tube in her mouth it was impossible. The next step will be to try and take her off the ventilator. We don't know when that will be but we will keep everyone posted. We are all praying for this ICU experience to be over. We are so proud of Lexe. She is fighting so hard her spirit and determination are amazing.
Today Lexe's ANC count, a measure of her own bodies immunity, jumped from 300 to 1400. It is rare to see such a jump over a 24 hour period. It now means that Lexe can help herself in clearing out her own lungs. Several day ago Lexe was placed on an oscillating vent to help break up the material in her lungs. This type of vent sends small rapid infusions of oxygen into the lungs, shaking them, to help diffuse all the secretions. Today Lexe was transitioned back to a regular vent. She tolerated the transition and seems to be much more comfortable with the vent. Lexe was also taken off the paralytic medication but remains heavily sedated. Lexe continues to fever. She remains on the cooling blanket, however, now she is off the paralytic medication her shivering reflex is active making the blanket less effective because shivering heats the body.
It was tough for us to leave her tonight because she was in pain and very disoriented. She was trying to communicate with us but with the vent tube in her mouth it was impossible. The next step will be to try and take her off the ventilator. We don't know when that will be but we will keep everyone posted. We are all praying for this ICU experience to be over. We are so proud of Lexe. She is fighting so hard her spirit and determination are amazing.
Thursday, August 9, 2012
Yesterday started out with such promise. We were all expecting a great day but unfortunately Lexe suffered a setback around 1:00 pm. Lexe's left lung collapsed causing her oxygen saturation rates to drop to life threatening levels. It was a very tense situation as the team of providers in the ICU worked hard to stabilize Lexe. It was very hard to watch.
The decision was made to perform a bronchoscopy. The pulmonary team inserted a camera and cannula into her lungs to deep suction her lung fields. She has very thick secretions in both lungs making suctioning difficult. The physician removed as much of the secretions as possible. Lexe tolerated the procedure well. Later in the day her left lung re-inflated. Both lungs still contain secretions affecting Lexe's respiratory output. She remains ventilated and sedated. However we hope her oxygen saturation level will improve.
Today the pulmonary team performed another bronchoscopy and removed more of the secretions. At present Lexe remains critically ill. We are very hopeful that Lexe can have a quiet evening. Her heart continues to beat strong and hard, and her fluid output is improving. At some point, most likely today, Lexe's paralytic medication will be reduced. She needs to start moving to prevent secondary problems associated with her paralytic state.
The decision was made to perform a bronchoscopy. The pulmonary team inserted a camera and cannula into her lungs to deep suction her lung fields. She has very thick secretions in both lungs making suctioning difficult. The physician removed as much of the secretions as possible. Lexe tolerated the procedure well. Later in the day her left lung re-inflated. Both lungs still contain secretions affecting Lexe's respiratory output. She remains ventilated and sedated. However we hope her oxygen saturation level will improve.
Today the pulmonary team performed another bronchoscopy and removed more of the secretions. At present Lexe remains critically ill. We are very hopeful that Lexe can have a quiet evening. Her heart continues to beat strong and hard, and her fluid output is improving. At some point, most likely today, Lexe's paralytic medication will be reduced. She needs to start moving to prevent secondary problems associated with her paralytic state.
Tuesday, August 7, 2012
Today has been a day of Lexe holding her own. She is putting up a big fight!! The medical team in the Intensive Care Unit have been able to stabilize Lexe's blood pressure for now. She continues to be reliant on Norepinephrine to help her keep a viable blood pressure. Today's chest x-ray showed her lungs to be worse than yesterday. Lexe continues to bleed from her lungs. To minimize coughing and the chance of further lung irritation, Lexe has been put on a full time IV paralyzing her. Lexe continues to fever at a high rate and is on a cooling blanket most of the time. Being paralyzed helps Lexe not shiver as she cools. Lexe has stopped responding to the drug they were giving her to reduce her fever. When cooled down Lexe's heart rate drops which is a really good thing. Lexe's heart continues to beat at a very high rate.
One big issue facing Lexe right now is fluid overload. Her volume of fluid intake is outpacing her output. This is causing fluid issues with the lungs and heart. At present they are working on keeping her blood pressure up and giving her medication to help her process fluids. It is a tough balancing act involving many different drug combinations. At present Lexe has 10 different IV pumps working to deliver a wide spectrum of drug and blood products.
We are very hopeful that Lexe's kidneys will continue to be efficient. They have been stressed over the last several days.
We are praying for an uneventful night!!
Thank you for all the help you have given our family during this very stressful time. We are especially grateful for the kind words and prayers that have been sent our way. We are blessed to have so many people concerned for our family.
One big issue facing Lexe right now is fluid overload. Her volume of fluid intake is outpacing her output. This is causing fluid issues with the lungs and heart. At present they are working on keeping her blood pressure up and giving her medication to help her process fluids. It is a tough balancing act involving many different drug combinations. At present Lexe has 10 different IV pumps working to deliver a wide spectrum of drug and blood products.
We are very hopeful that Lexe's kidneys will continue to be efficient. They have been stressed over the last several days.
We are praying for an uneventful night!!
Thank you for all the help you have given our family during this very stressful time. We are especially grateful for the kind words and prayers that have been sent our way. We are blessed to have so many people concerned for our family.
Monday, August 6, 2012
We are very sad to report that Lexe situation has continued to deteriorate. This morning she was unable to breath on her own and was sedated and put on a breathing tube. All of her breathing is now being done by a machine. Lexe has been chemically paralyzed and put on a cooling pad to reduce her core temperature. It appears that the bacteria is now having a negative effect on her lungs. Lexe's heart functions are also not so great right now with a resting heart beat of around 115-125 beats per minute. Her heart is working really hard right now and is enlarged with some fluid in her heart sack. We have been told that Lexe is in critical/stable condition. The nursing and physician staff in the ICU are great and are giving Lexe the best care in the world.
We as a family are very worried and are praying for her to catch a break! It seems that the Intensive Care Unit will be our home for some time. Please pray for Lexe we all need her in our lives for many years to come.
We as a family are very worried and are praying for her to catch a break! It seems that the Intensive Care Unit will be our home for some time. Please pray for Lexe we all need her in our lives for many years to come.
Sunday, August 5, 2012
Since the conclusion of Lexe's third round of chemo she had been doing very well up until Thursday night. Her blood pressure dropped to dangerously low levels and was accompanied by extremely high fevers, ranging from 103-107 degrees. Because of the low blood pressure, she was taken down to the Pediatric Intensive Care Unit. A blood culture confirmed that she had a bacterial infection in her blood and she was immediately put on antibiotics. The antibiotics are working and she is no longer septic, but has developed further complications including Acute Respiratory Distress Syndrome (ARDS). ARDS compromises the ability to breathe and it became very difficult for her to breathe last night. The decision was made this morning to put her on a BIPAP machine. The BIPAP forced air into lungs so that she can properly oxygenate. Lexe is expected to be in the PICU for several more days, during which they will try to get her breathing on her own. At this time we have to limit Lexe's visitors to immediate family only. We are grateful for the fasting and prayers on our behalf. We love you all.
Thursday, July 26, 2012
To our Family, Friends and Lexe Supporters,
On September 29th, CureSearch will be having its annual walk in Salt Lake City. The walk will be held at Sugar House Park (1300East 2100 South). CureSearch is a organization that raises money and awareness strictly for childhood cancer (most cancer organization only give 4% to childhood cancer). The walk consists of individual teams. Each of these teams are made in honor of a child who is fighting or has fought cancer. Each team raises money, all of which goes towards finding a cure for all types of childhood cancer.
We have made a team in honor of Lexe called "Team Lexe Kicks". We would love to have as many team members as we can! To register for "Team Lexe Kicks", you can go to our team page which is www.curesearchwalk.org/saltlake/teamlexekicks.
To register, click on the 'register' button. Then click on the picture of Utah. It will take you to the link for the Utah race. Click on that link and agree to the waiver. It will then take you to a page where you select what type of team. Click on Join a team. After that type in the name 'Team Lexe Kicks' and select our team. You will then be directed to our team page. At the top of the page, right under the title, is a 'join our team' button. Click on that and then fill out your information and donation amount. (It is a $10 registration fee for anyone over the age of 15). Click submit and you are done! Those who register before September 2nd will receive a Lexe t-shirt to wear at the walk. Also, even if you don't participate in the actual walk, you can still donate money to our team.
To get more information on CureSearch, what it does and the walk, go to www.curesearchwalk.org. If you have any questions regarding Team Lexe Kicks, please email Hadlee at teamlexekicks@gmail.com. Also, after you have registered, email us your name(s) and t-shirt size(s). Thank you for all of your love and support! We hope you can join us in this event to "Kick Cancer!"
On September 29th, CureSearch will be having its annual walk in Salt Lake City. The walk will be held at Sugar House Park (1300East 2100 South). CureSearch is a organization that raises money and awareness strictly for childhood cancer (most cancer organization only give 4% to childhood cancer). The walk consists of individual teams. Each of these teams are made in honor of a child who is fighting or has fought cancer. Each team raises money, all of which goes towards finding a cure for all types of childhood cancer.
We have made a team in honor of Lexe called "Team Lexe Kicks". We would love to have as many team members as we can! To register for "Team Lexe Kicks", you can go to our team page which is www.curesearchwalk.org/saltlake/teamlexekicks.
To register, click on the 'register' button. Then click on the picture of Utah. It will take you to the link for the Utah race. Click on that link and agree to the waiver. It will then take you to a page where you select what type of team. Click on Join a team. After that type in the name 'Team Lexe Kicks' and select our team. You will then be directed to our team page. At the top of the page, right under the title, is a 'join our team' button. Click on that and then fill out your information and donation amount. (It is a $10 registration fee for anyone over the age of 15). Click submit and you are done! Those who register before September 2nd will receive a Lexe t-shirt to wear at the walk. Also, even if you don't participate in the actual walk, you can still donate money to our team.
Sunday, July 22, 2012
Lexe started her third round of chemotherapy last friday evening. She will be dosed in the morning and evening thru this coming Wednesday. As mentioned earlier, her chemo will be a total of five days. The duration is shorter than previous rounds but the dosage she is receiving is much higher. Things are going okay. Lexe has developed a sore throat, most likely a result of the chemo. Chemotherapy destroys the fast growing cells in the body which include the lining in the mouth and throat. As expected during chemo, Lexe has no appetite.
As a preventative measure against chemo induced fevers, Lexe has been put on a steroid that she gets prior to every chemo dose. Unfortunately the steroids are leaving Lexe looking kinda puffy right now. A small price to pay to keep the fevers away.
Last Tuesday Danielle Sunderhaus, one of the coaches at the University of Arizona, came to visit Lexe at our home. We have now had all three of Lexe's coaches out to our home. We had a great visit went to lunch and then drove up to Snowbird Ski Resort to take a tram ride. It was fun! We are really looking forward to following the U of A soccer team and know that they are in for a good season.
Jenn Heslop once again decorated Lexe's hospital room. The room theme for round three is "Laughter Is The Best Medicine". Lexe's room is covered in jokes from family and friends. Thanks Jenn and Carli!!
Come Wednesday the last of the chemo for round three will be done!!!!
As a preventative measure against chemo induced fevers, Lexe has been put on a steroid that she gets prior to every chemo dose. Unfortunately the steroids are leaving Lexe looking kinda puffy right now. A small price to pay to keep the fevers away.
Last Tuesday Danielle Sunderhaus, one of the coaches at the University of Arizona, came to visit Lexe at our home. We have now had all three of Lexe's coaches out to our home. We had a great visit went to lunch and then drove up to Snowbird Ski Resort to take a tram ride. It was fun! We are really looking forward to following the U of A soccer team and know that they are in for a good season.
![]() |
Lexe and Danielle at the top of Snowbird |
Round three room theme |
Jokes like this one are all over the walls |
Each strip of the banners contain a joke that visitors pull and share |
Monday, July 16, 2012
Lexe has really enjoyed her time at home. Everything feels so normal. However, all good things must come to an end. This coming Wednesday Lexe is scheduled for both a bone marrow aspirate and a spinal tap. This will be outpatient surgery and Lexe will return home after the two procedures. She will be readmitted to the hospital on Friday morning for the start of chemo...round three. Chemo will be given for only five days, unfortunately, the strength of the chemo will increase ten fold!! At this point Lexe's attitude is lets get to the hospital so we can get this over with.
During this break from the hospital Lexe has turned to golf for exercise. Lexe and Laurie have taken a lesson and spent time on the driving range. Lexe has developed a very good golf swing.
Last week lexe received a package in the mail from Amy Rodriguez, a forward on the USA Women's National Team. Amy wrote Lexe a really cool letter and included a shirt signed by the entire Women's National Team. The team played a final warm up match against Canada in Salt Lake City on June 30th
and then departed to London for the olympic games. Really awesome of Amy to take an interest in Lexe.
Overall things are going well. Lexe is positive and happy. Life is good!!
During this break from the hospital Lexe has turned to golf for exercise. Lexe and Laurie have taken a lesson and spent time on the driving range. Lexe has developed a very good golf swing.
Last week lexe received a package in the mail from Amy Rodriguez, a forward on the USA Women's National Team. Amy wrote Lexe a really cool letter and included a shirt signed by the entire Women's National Team. The team played a final warm up match against Canada in Salt Lake City on June 30th
and then departed to London for the olympic games. Really awesome of Amy to take an interest in Lexe.
![]() |
Jersey signed by US National Team |
Thursday, July 5, 2012
Round two officially ended with Lexe coming home on Tuesday. It is great to have her home. Our wonderful friends once again greeted Lexe with some cool signage. It sure is nice to know that this unexpected journey is 50% complete.
Lexe will be home for 10-14 days depending on how fast her counts recover. Until then it will be a steady diet of home cooking and a comfortable bed.
The KSL SportsBeat Saturday segment aired last Saturday and we feel that they did a great job. Jeremiah Jensen provided me with the following link to the story:
http://www.ksl.com/index.php?sid=21084116&nid=294&title=teen-battling-leukemia-inspires-others-with-amazing-goal
We have received many comments from people, suffering from a variety of difficult illnesses and situations, who have been buoyed up by Lexe's positive outlook. It is a blessing to all of us that Lexe has chosen to fight cancer with such an amazing attitude. She is mature beyond her years. We all hope that the media exposure that Lexe's story is receiving continues to help others and focuses attention to the fact that many people are battling cancer, especially leukemia.
We stumbled across this great picture of Lexe receiving her high school diploma from Alta High School Principal Fidel Montero. The whole event was so rushed we were never really able to take a good picture. This one really captures the moment.
Thanks again to all of our support group. We know we can't do this without you all.
Lexe will be home for 10-14 days depending on how fast her counts recover. Until then it will be a steady diet of home cooking and a comfortable bed.
The KSL SportsBeat Saturday segment aired last Saturday and we feel that they did a great job. Jeremiah Jensen provided me with the following link to the story:
http://www.ksl.com/index.php?sid=21084116&nid=294&title=teen-battling-leukemia-inspires-others-with-amazing-goal
We have received many comments from people, suffering from a variety of difficult illnesses and situations, who have been buoyed up by Lexe's positive outlook. It is a blessing to all of us that Lexe has chosen to fight cancer with such an amazing attitude. She is mature beyond her years. We all hope that the media exposure that Lexe's story is receiving continues to help others and focuses attention to the fact that many people are battling cancer, especially leukemia.
We stumbled across this great picture of Lexe receiving her high school diploma from Alta High School Principal Fidel Montero. The whole event was so rushed we were never really able to take a good picture. This one really captures the moment.
![]() |
Lexe and Alta Principal Fidel Montero |
A good friend brought Lexe a puppy to play with for the evening |
Friday, June 29, 2012
For those who may be interested, KSL, Salt Lake City channel 5, is airing a segment on Lexe Saturday June 30th. The segment will air at 6:30 pm and again at 10:35 pm.
Lexe is developing some positive cell activity. We are all hoping that she can come home some time next week.
Lexe is developing some positive cell activity. We are all hoping that she can come home some time next week.
Sunday, June 24, 2012
It has been awhile since our last post. Lexe has concluded round 2 of chemo and is now in count recovery mode. Lexe's ANC count is 0, meaning no immunities, and she is reliant on blood and platelet transfusions. Things are going good, no fevers or other illnesses just a waiting game. Its hard to say how long it will take Lexe's body to start producing cells but hopefully she can come home in about 2 weeks time.
A group of soccer players and coaches from the Netherlands, who were in Utah running soccer camps, heard of Lexe's story watched her goal on youtube and requested a visit with Lexe. The visit was arranged by one of our neighbors. They are a great group of folks. Lexe was given some cool gifts from the Netherlands.
Lexe's U of A coach, Lisa Oyen, shared with us a link to a short article on Lexe in Wildcat Wednesday, a University of Arizona Athletic Department publication. Scroll down once you open the link and the article is called "Courage Personified". Again the school continues to stand strong behind Lexe. Go Cats!
http://www.arizonawildcats.com/sports/inside-athletics/spec-rel/062112aaa.html
Last Monday Lexe was visited by a special friend, Taleah Stevenson. Taleah is 3 years old and a fellow leukemia patient and is doing great! Laurie's good friend, Trisha Orr is Taleah's grandmother. The fight against cancer bonds together people of all ages and sizes.
Jeremiah Jensen texted us yesterday to tell us that KSL will be airing a segment on Lexe during next weekends Sportsbeat Sunday program. Jeremiah spent several hours in our home and is a great guy. We are interested to see how the segment rolls out.
We are all doing great. In a few weeks time we can officially declare this experience 1/2 over. Lexe remains upbeat and happy. Despite some hard days, we all feel blessed that Lexe is so strong, both physically and mentally.
A group of soccer players and coaches from the Netherlands, who were in Utah running soccer camps, heard of Lexe's story watched her goal on youtube and requested a visit with Lexe. The visit was arranged by one of our neighbors. They are a great group of folks. Lexe was given some cool gifts from the Netherlands.
Lexe's new Dutch friends |
http://www.arizonawildcats.com/sports/inside-athletics/spec-rel/062112aaa.html
Last Monday Lexe was visited by a special friend, Taleah Stevenson. Taleah is 3 years old and a fellow leukemia patient and is doing great! Laurie's good friend, Trisha Orr is Taleah's grandmother. The fight against cancer bonds together people of all ages and sizes.
Lexe and Taleah |
We are all doing great. In a few weeks time we can officially declare this experience 1/2 over. Lexe remains upbeat and happy. Despite some hard days, we all feel blessed that Lexe is so strong, both physically and mentally.
Wednesday, June 13, 2012
Round two of chemo has been a bit rough. Today is day six of eight. There is light at the end of the tunnel!! Lexe had several nights of very high fevers. During one tough night Lexe's fever spiked up to 106 degrees. She had an episode of the rigors, extreme shaking and shivering, that needed to be controlled with Demerol. The nursing staff at Primary Children's is outstanding and they have worked very hard to keep Lexe's fevers and nausea under control. Eating is difficult right now. Lexe has developed mouth and throat sores that make swallowing very painful. She is currently using a morphine pump to manage the pain. In typical Lexe fashion, she needs to be forced to use the pump. Getting an honest pain indication from Lexe is usually a negotiation. Lexe is one tough cookie!!!
Thank you to all of our support team who have provided our family with meals, rides, gifts, gardening and the list goes on. Most of all thank you to those who have provided a shoulder to lean on during crummy days.
Thank you to all of our support team who have provided our family with meals, rides, gifts, gardening and the list goes on. Most of all thank you to those who have provided a shoulder to lean on during crummy days.
Saturday, June 9, 2012
Round two of chemo is officially underway. Lexe was admitted to the hospital on Friday morning and the day began with a spinal tap and chemo in the spinal column followed by the start of chemo in the evening. The next round will be much like the first round, ten days of chemo every morning and evening. Lexe will be in the hospital again for approximately one month.
Lexe is currently not feeling well she is already running a fever. Darn!!
It was wonderful having Lexe at home, we felt normal for a couple of weeks. The highlight was her graduation. Lexe was able to attend her graduation and even walked to get her diploma. She was seated away from the graduating students and was one of the first names read. Lexe walked and we went straight home. Not ideal, but she made it!!
The goal Lexe scored during her Utah Avalanche Tournament last Saturday, the game she was not supposed to be in, is receiving a lot of media attention. We were happy that someone captured the goal on film but we did not expect to receive this much attention from it. Lexe's goal, and story, was the lead off story on Fox13 several nights ago. Rick Aaron came to our house and interviewed Lexe and several Avalanche teammates along with her Coach Jo Barney. We felt that Rick did a great job with the story and we were happy that he focused significant attention on cancer awareness and AML.
http://on.fox13now.com/q5eaSOR
This same story with be played again Sunday night at 10:05 PM on Fox 13 Sports Page.
KSL Sports Beat will be featuring Lexe and her fight with cancer towards the end of June. Jeremiah Jensen spent a couple of hours at our home last week interviewing Lexe and our family for the story. Jeremiah promised us that he would devote a substantial amount of time to cancer awareness and leukemia.
Thank you to all those who been so very kind to our family.
Lexe is currently not feeling well she is already running a fever. Darn!!
It was wonderful having Lexe at home, we felt normal for a couple of weeks. The highlight was her graduation. Lexe was able to attend her graduation and even walked to get her diploma. She was seated away from the graduating students and was one of the first names read. Lexe walked and we went straight home. Not ideal, but she made it!!
being received by school administration |
Finally!! |
Diploma in hand, we headed for the exit |
![]() |
Lexe Selman, class of 2012 |
http://on.fox13now.com/q5eaSOR
This same story with be played again Sunday night at 10:05 PM on Fox 13 Sports Page.
KSL Sports Beat will be featuring Lexe and her fight with cancer towards the end of June. Jeremiah Jensen spent a couple of hours at our home last week interviewing Lexe and our family for the story. Jeremiah promised us that he would devote a substantial amount of time to cancer awareness and leukemia.
Thank you to all those who been so very kind to our family.
Sunday, June 3, 2012
This past weekend Lexe's Utah Avalanche club team played two games in Park City against a team from Colorado. Lexe's physician gave her permission to warm up with her team. Well as it turned out, Lexe's coach decided at the last minute to let Lexe start the game and take the opening kick. She was supposed to kick the ball out of play and then leave the field. But once the whistle blew, it was game on! She jumped into the game full tilt with her central line and all. She ended up scoring an amazing goal less than one minute into the game. One of her U of A coaches was at the game and his comment was "this is something out of the movies". It was one of the most remarkable things we have ever seen. One of the spectators at the game filmed the goal and put it up on YouTube. The link is below.
Lexe warming up with her team |
Lexe's Avalanche family, her "94" team mates. |
Moments before the start of the game on Saturday. |
Tuesday, May 29, 2012
Home Sweet home. The last seven days at home have been great. Lexe has really enjoyed her time at home and has stayed healthy!! Lexe has spent a lot of time resting and eating home cooking. We had a fun time last Friday celebrating Lexe's 18th birthday. A few of Lexe's friends came by and we ended up watching a movie and grilling burgers. Lexe felt it was one of her best birthdays ever.
On Sunday Elle Duke and her mom came by the house, Elle wrote "I came to win" - Lexe's Song, and sang to Lexe. Elle is a very talented young lady and her songs were awesome. We all enjoyed the visit and appreciate the interest the Duke family has shown our family. Elle is ready to release her first album and we can't wait to purchase it!
The Campbell's and the Reinbold's gave Lexe a cool pair of orange nikes for her birthday |
Happy 18th |
Birthday visitors |
On Sunday Elle Duke and her mom came by the house, Elle wrote "I came to win" - Lexe's Song, and sang to Lexe. Elle is a very talented young lady and her songs were awesome. We all enjoyed the visit and appreciate the interest the Duke family has shown our family. Elle is ready to release her first album and we can't wait to purchase it!
Marci Duke top right, Elle Duke bottom right |
On Memorial Day, Lexe, Laurie and her sister Mackenzie went for a hike up Bell Canyon in Sandy. It was a beautiful day and Lexe did great on the hike. Tons of energy.
Lexe and her sister Mackenzie up Bell Canyon |
Laurie and Lexe |
Lexe, Mackenzie and laurie hiking Bell Canyon |
Lexe continues to have her health monitored by home health care nurses. Her ANC count is still only 200. We are all hoping that her count can get to 500 by the end of the week. As thing stand, Lexe is scheduled for an echocardiogram, bone marrow aspirate, and spinal tap this coming Friday. The plan is to admit Lexe to the hospital June 6th and start her second round of chemo.
Alta High gradation is scheduled for June 5th. Lexe has received permission to attend her graduation! We have met with high school officials and they are going to work with us to minimize Lexe's exposure to others. It look like Lexe can sit away from the crowd and will be the first student read. She is both excited and nervous to attend the graduation.
Alta High gradation is scheduled for June 5th. Lexe has received permission to attend her graduation! We have met with high school officials and they are going to work with us to minimize Lexe's exposure to others. It look like Lexe can sit away from the crowd and will be the first student read. She is both excited and nervous to attend the graduation.
Subscribe to:
Posts (Atom)